Close this message to accept cookies or find out how to manage your cookie settings. What funds will you need to deliver your planned dissemination activity? research findings to participants. Stakeholder engagement: Work out who your primary audience is; engage with them early and keep in touch throughout the project, ideally involving them from the planning of the study to the dissemination of findings. Consider a range of tailored outputs for decision makers, patients, researchers, clinicians, and the public at national, regional, and/or local levels as appropriate. ‘@kindle.com’ emails can be delivered even when you are not connected to wi-fi, but note that service fees apply. Email your librarian or administrator to recommend adding this journal to your organisation's collection. Do patients participating in clinical trials want to know study results? Think who might benefit from using your findings. Include this in your application (or talk to your funding programme). Partners / Influencers: think about who you will engage with to amplify your message. Consider whether your dissemination plan would benefit from liaising with others, for example, NIHR Communications team, your institution’s press office, PPI members. and This site is optimised for modern browsers. Most researchers want to let others, including PSP, know about their findings but lack knowledge about how to effectively communicate findings to a lay audience. Channels: use the most effective ways to communicate your message to your target audience(s) e.g. When will dissemination activity occur? Messaging: consider the main message of your research findings. Understand how and where your audience looks for/receives information. Identify and plan critical time points, consider external influences, and utilise existing opportunities, such as upcoming conferences. Generating meaningful research impact requires engaging with the right people from the very beginning of planning your research idea. Remember to feedback study findings to participants, such as patients and clinicians; they may wish to also participate in the dissemination of the research and can provide a powerful voice. We designed a two-phase, mixed methods pilot study to understand experiences, expectations, concerns, preferences, and capacities of researchers and PSP in two age groups (adolescents/young adults (AYA) or older adults) and to test communication prototypes for sharing, receiving, and using information on research study findings. How will you know if you are successful and made an impact? Stevens, Kathleen R. social media, websites, conferences, traditional media, journals. More advice from the NIHR on knowledge mobilisation and dissemination. We want to ensure that the research we fund has the maximum benefit for patients, the public and the NHS. Remember to contact your funding programme for guidance on reporting outputs. Translating research findings into practice requires understanding how to meet communication and dissemination needs and preferences of intended audiences including past research participants (PSPs) who want, but seldom receive, information on research findings during or after participating in research studies. Identify and plan critical time points, consider external Dissemination refers to “a planned process that involves consideration of target audiences and the settings in which research findings are to be received and, where appropriate, communicating and interacting with wider policy and…service audiences in ways that will facilitate research uptake in decision-making processes and practice” (Wilson, Petticrew, Calnan, & Natareth, 2010, p. 91). Communicating and disseminating research findings to study participants: Formative assessment of participant and researcher expectations and preferences, © The Association for Clinical and Translational Science 2020, This is an Open Access article, distributed under the terms of the Creative Commons Attribution licence (, Journal of Clinical and Translational Science, Dissemination and implementation of comparative effectiveness evidence: key informant interviews with clinical and translational science award institutions, Journal of Comparative Effectiveness Research, Clinical and translational science awards: a framework for a national research agenda, Informing clinical trial participants about study results. Translating research findings into practice requires understanding how to meet communication and dissemination needs and preferences of intended audiences including past research participants (PSPs) who want, but seldom receive, information on research findings during or after participating in research studies. Querying the putative obligation to return research results to participants, Informing participants of allocation to placebo at trial closure: Postal survey, Patient-Centered Outcomes Research Institute (PCORI), Find out more about sending to your Kindle, Find out more about sending content to Dropbox, Find out more about sending content to Google Drive, http://creativecommons.org/licenses/by/4.0/, https://www.pcori.org/assets/2013/11/PCORI-Board-Meeting-Methodology-Report-for-Acceptance-1118131.pdf, https://www.pcori.org/funding-opportunities/communication-and-dissemination-research-cycle-1-2017, Personalized training pathways for translational science trainees: Building on a framework of knowledge, skills, and abilities across the translational science spectrum, Bibliometrics approach to evaluating the research impact of CTSAs: A pilot study, Designs and methods for implementation research: Advancing the mission of the CTSA program, Scientific Review Committees as part of institutional review of human participant research: Initial implementation at institutions with Clinical and Translational Science Awards, An exploratory study of Clinical and Translational Science Award community-engaged research training programs, A REDCap-based model for electronic consent (eConsent): Moving toward a more personalized consent, Development of a self-directed, online-learning curriculum to increase community-engaged research in clinical and translational science, Building diverse careers in clinical and translational research: Evaluation of a certificate program in translational research, Satisfaction and perceptions of research participants in clinical and translational studies: An urban multi-institution with CTSA, KL2 mentored career development programs at clinical and translational science award hubs: Practices and outcomes. Find out more about sending to your Kindle. Potential risks and sensitivities: be aware of the relevant current cultural and political climate. Be realistic and pragmatic. It is also an ethical imperative. 2020. If this is the first time you use this feature, you will be asked to authorise Cambridge Core to connect with your account. When seeking approval to conduct your research study from your school’s Institutional Review Board (IRB), you may be asked to explain how you will share or disseminate the findings of your study. JNCI Journal of the National Cancer Institute, Communicating the results of clinical research to participants: attitudes, practices, and future directions, Dissemination as dialogue: building trust and sharing research findings through community engagement, Disseminating research findings: what should researchers do? commissioners, patients, clinicians and charities. A Narrative Summary is a written summary of a study’s research findings. You may also have secondary audiences and others who emerge during the study, to consider and engage. This guide is for researchers who are applying for funding or have research in progress. Find out more about sending to your Kindle. Posted July 19, 2018. Alternatively, if you worked with an organization to distribute your survey to participants, that same organization may also be willing to help disseminate your findings (e.g., by a listserv e-mail). for this article. Our findings offer insight into how to engage both PSP and researchers in the design and use of strategies to share research findings and highlight the need to develop services and support for researchers as they aim to bridge this translational barrier. Researchers wanted specific training and/or time and resources to help them prepare messages in formats to meet PSP needs and preferences but were unaware of resources to help them do so. Find out more about sending content to Dropbox. Coverage and frequency: how many people are you trying to reach? Dissemination of Research Findings to Research Participants Living with HIV in Rural Uganda: Challenges and Rewards The Harvard community has made this article openly available. Abstract views reflect the number of visits to the article landing page. It is a useful way to succinctly summarize the purpose, main findings, and impact of a research study. Document service format: Produce targeted outputs that are in an appropriate format for the best experience, use! Has the maximum benefit for patients, the public and the NHS audience who can champion findings. Can select to send to either the @ free.kindle.com or @ kindle.com ’ emails are free but can only sent! Basic courtesy, and get influential opinion leaders on board to act as champions know results... The user consider the main message of your research on their practice or daily life the public and barriers... 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